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NASW Standards
of Social Work Practice in Palliative and End of Life
Care
DRAFT 9/16/03
Gary Bailey, MSW
NASW President (2003-2004)
Palliative and End of Life Care Expert
Steering Committee (2002)
- Susan Blacker, BSW, MSW, RSW, Volunteer
Leader
- Iraida V. Carrion,
MSW, LCSW
- Yvette Colon, MSW,
ACSW, BCD
- Pamela M. Jackson,
MS
- Stuart Kaufer, MSW,
CSW, ACSW
- Patricia O'Donnell, DSW, LICSW, CCM
- Mary Raymer, MSW, ACSW
- Sherri Roff, CSW, PhD Candidate
- Elizabeth Smart, MA
- Sharon Hines Smith, PhD, QCSW, MSW
- Mila Ruiz Tecala, ACSW, DCSW, LICSW,
LCSW-C, LCSW
- Kathy Walsh-Burke, DSW
NASW Staff:
- Elizabeth J. Clark, PhD, ACSW, MPH
Executive Director
- Toby Weismiller, ACSW
Director, Professional Development & Advocacy
- Tracy Whitaker, ACSW
- Karyn Walsh, ACSW, LCSW
Contents
- Introduction
- Definitions
- Background
- Guiding Principles
- Standards for Professional Practice
- Standards for Professional Preparation and
Development
- References
- Resources
- Acknowledgement
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All
comments must be submitted by December 18, 2003.
Email your comments regarding this document to the following address:
spforsworkers@naswdc.org
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NASW Standards of Social Work Practice in
Palliative and End of Life Care
Introduction
All social workers, regardless of practice settings,
will inevitably work with clients facing acute or long-term situations
involving life-limiting illness, dying, death, grief, and bereavement.
Using their expertise in working with populations from varying
cultures, ages, socioeconomic status, and nontraditional families,
social workers help families across the life span in coping with
trauma, suicide, and death and must be prepared to assess such
crises and intervene appropriately.
In relation to the number of agencies, institutions,
and other sites of practice, social work is the most broadly
based profession that encounters individuals and families affected
by end of life issues. Social work practice settings include
health and mental health agencies, hospitals, hospices, home
care, nursing homes, day care and senior centers schools, courts,
child welfare and family service agencies, correctional systems,
agencies serving immigrants and refugees, substance abuse programs,
and employee assistance programs.
Social workers are challenged
to provide expertise and skill in palliative and end of life
care. At the same time, they have the opportunity to influence
a range of professionals, consumers, and laypersons regarding
care of the dying and the bereaved. The need for social workers
trained and skilled in working with palliative and end of life
care situations has increased because of advancements in medical
technology combined with rising rates of chronic illness.
End of life care is a growing area of practice,
and social workers may feel unprepared to deal with the complex
issues it encompasses (Raymer 1999, Christ and Sormanti, 1999).
These standards are designed to enhance social workers’ awareness
of the skills, knowledge, values, methods, and sensitivities
needed to work effectively with clients, families, health care
providers, and the community when working in end of life situations.
Definitions
1. End
of Life Care
End of life care refers to the approach to dying
and death in the life of an individual. Whether sudden or expected,
the end of an individual's life has a great impact on that individual
and his or her family system.
Ends of life decisions encompass a broad range
of medical and psychosocial determinations that each individual
must make before the end of his or her life. Individuals may
address such decisions through advance planning, or in emergencies,
when careful consideration is not possible, they may leave the
difficult decisions to be made, in anguish, by family members
and friends who are ill prepared to decide what their loved ones
might have wanted. Such decisions may include where one plans
to spend the final months before death and the degree of self-sufficiency
one wishes at that time. The use of personal, family, and societal
resources to attain these decisions may change, depending on
the course of a particular illness, and are among some of the
most important decisions individuals and family members may face.
End of life decision making is
a health care matter. End of life care crosses ethical, religious,
cultural, and emotional areas. The complexity of issues covers
the allocation of individual, family, and societal resources.
It concerns individuals' deepest and most dearly held fears,
values, and beliefs. End of life care remains delicate and often
controversial.
There is increasing agreement that
coming to terms with end of life issues, making informed decisions,
ensuring that loved ones are untroubled by these decisions, and
that society honors them, are vital life tasks for everyone.
It is with just such a constellation of responsibilities that
social work's values and skills can make a significant contribution
(Kaplan, 1995).
2. Palliative
Care
Palliative
care is an approach that improves the quality of life of patients
and their families facing the problems associated with life-threatening
illness, through the prevention and relief of suffering by means
of early identification and comprehensive assessment, and treatment
of pain and other physical, psychosocial, and spiritual problems.
Palliative care:
- Provides
relief from pain and other distressing symptoms
- Affirms
life and regards dying as a normal process
- Intends
neither to hasten or postpone death
- Integrates
the psychological and spiritual aspects of patient care
- Offers
a support system to help patients live as actively as possible
until death
- Offers
a support system to help the family cope during the patient’s
illness and in their own bereavement
- Uses
a team approach to address the needs of patients and their
families, including bereavement counseling, if indicated
- Enhances
quality of life and may also positively influence the course
of illness
- Is
applicable early in the course of illness, in conjunction with
other therapies that are intended to prolong life, such as
chemotherapy or radiation therapy, and includes those investigations
needed to better understand and manage distressing clinical
complications (World Health Organization, 2003)
3. Hospice
and Palliative Care
Considered the model for quality,
compassionate care for people facing a life-limiting illness
or injury, hospice and palliative care involve a team-oriented
approach to expert medical care, pain management, and emotional
and spiritual support expressly tailored to the patient's needs
and wishes. Support is provided to the patient's loved ones as
well. At the center of hospice and palliative care is the belief
that each of us has the right to die free of pain, with dignity,
and that our families should receive the necessary support to
allow us to do so.
Hospice focuses on
caring, not curing and, in most cases, care is provided in the
patient's home. Hospice care also is provided in freestanding
hospice centers, hospitals, and nursing homes, and other long-term
care facilities. Hospice services are available to patients of
any age, religion, race, or illness. Hospice care is covered
under Medicare, Medicaid, most private insurance plans, HMOs,
and other managed care organizations.
Palliative care extends
the principles of hospice care to a broader population that could
benefit from receiving this type of care earlier in their illness
or disease process. No specific therapy is excluded from consideration.
An individual’s needs must be continually assessed, and treatment
options should be explored and evaluated in the context of the
individual’s values and symptoms. Palliative care, ideally, would
segue into hospice care as the illness progresses (National Hospice
and Palliative Care Organization, 2003).
4. Bereavement
Bereavement has been defined by
several experts as the objective situation of a person who has
experienced the loss of a significant person or other attachment
figure.
5. Grief
Grief is a reaction to loss. Grief
is an individual experience for each person who has sustained
a loss. Certain losses affect entire group systems such as families,
communities, cultures, and countries. Grief affects persons from
every standpoint including the physical, emotional, behavioral,
cognitive, and spiritual.
NASW endorses the Last Acts Precepts
for Palliative Care. (The precepts can be obtained from
http://www.lastacts.org)
Background
During the past decade, consumer advocacy groups,
health professional organizations, and government agencies have
paid increased attention to the quality and accessibility of
care at the end of life. The result has been that professions
involved in care delivery more closely scrutinize their own ability
to train members of their respective disciplines, and to contribute
to the building of a knowledge base for excellence in care of
the dying. Social work is no exception.
A 2002 Social Work Leadership
Summit on End of Life and Palliative Care addressed the need
for a formalized collaborative effort in the social work profession
that focuses on palliative and end of life care. During this
meeting, participants designed an agenda for the profession to
improve care for the dying and their families, and to elevate
social work’s role and contributions in this arena (Project on
Death in America, 2002).
Building on this foundation,
the National Association of Social Workers (NASW) has
developed Standards for Social Workers in Palliative and End
of Life Care as a useful practice tool for social workers.
The standards reflect core elements of social work functions
in palliative and end of life care and professional social work
practice, and are targeted toward the social worker practicing
in various settings dealing with these issues. For many practicing
social workers in palliative and end of life care, these standards
will reinforce current practices. For others, they will provide
an objective to achieve and guidelines to assist in practice.
Guiding Principles
Social workers have unique
and in-depth knowledge of, and expertise in working with, ethnic,
cultural, and economic diversity; family and support networks;
multidimensional symptom management; bereavement; interventions
with trauma and disaster relief; interdisciplinary practice;
interventions across the life cycle; and systems interventions
that address the fragmentation, gaps, and insufficiency in health
care. These are critical areas for implementing change in palliative
and end of life care.
Social workers also have expertise in analyzing,
influencing, and implementing policy change and development at
local, state, and federal levels that can be used to make important
improvements in the care of the dying. Social work research in
the care of the dying is also developing and addressing many
previously overlooked areas of end of life care, such as issues
concerning ethnic, cultural, and economic diversity, substance
abuse, incarceration, interventions at different life cycle stages,
problem-solving interventions, and intervention in community
contexts.
Social workers are concerned with enhancing quality
of life and promoting well-being for individuals, families (defined
broadly), and caregivers. When confronting issues related to
palliative and end of life care, social workers have a multidimensional
role as clinicians, educators, researchers, advocates, and community
leaders.
The scope of social work in palliative and end
of life care extends across many practice settings and populations,
and requires intervention at the individual, family, group, community,
and organizational levels. These standards consider practice
within palliative and end of life care and relevant to death-specific
loss situations and their aftermath.
STANDARDS
Standards for Professional Practice
Standard 1. Ethics and Values
The values, ethics, and standards of both the
profession and contemporary bioethics shall guide social workers
practicing in palliative and end of life care. The NASW Code
of Ethics (NASW, 1999) is one of several essential guides
to ethical decision-making and practice.
Interpretation:
Social workers who practice in palliative and end
of life care must be prepared to do so, as the area of practice
is challenged with ethical dilemmas, value conflicts, and questions
related to religion and the meaning of life. Specialized training
beyond the master’s degree is required to be an effective practitioner.
The minimal knowledge base needed for work in this
practice area includes an understanding of the following basic
ethical principles:
- Justice: the
duty to treat all fairly, distributing the risks and benefits
equally
- Beneficence: the
duty to do good, both for the individual and for all
- Nonmaleficence:
the duty to cause no harm, both for individuals and for all
- Understanding/tolerance: the
duty to understand and to accept other viewpoints, if reason
dictates that doing so is warranted
- Publicity: the
duty to take actions based on ethical standards that must be
known and recognized by all that are involved
- Respect
for the person: the duty
to honor others, their rights, and their responsibilities;
showing respect for others implies that we do not treat
them as a mere means to our end.
- Universality:
the duty to take actions that hold for everyone, regardless
of time, place, or people involved
- Veracity:
the duty to tell the truth
- Autonomy: the
duty to maximize the individual's right to make his or her
own decisions
- Confidentiality: the
duty to respect privacy of information and action
- Equality: the
duty to view all people as moral equals
- Finality: the
duty to take action that may override the demands of law, religion,
and
- social customs
In addition, the social
worker working in palliative and end of life care will be expected
to be familiar with the bioethical considerations common in palliative
and end of life care. Some examples include the right to refuse
treatment; assisted suicide; proxy decision making; and withdrawal
of treatment, including termination of ventilator support and
withdrawal of fluids and nutrition. Particular consideration
should be given to special populations, such as people with mental
illness, people with mental retardation, individuals whose competency
is questioned, children, and other groups who may lack decisional
capacity.
Standard 2. Knowledge
Social workers in palliative and end of life
care shall demonstrate a working knowledge of the theoretical
and biopsychosocial factors essential to effectively practice
with clients and professionals.
Interpretation:
The social worker possesses knowledge about navigating
the medical and social systems that frequently present barriers
to the client. Social workers have expertise in communication,
both within families and between the client/family and the health
care or interdisciplinary team. Drawing on knowledge of
family systems and interpersonal dynamics, the social worker
is able to examine the family’s experience in a unique way, to
conduct a comprehensive assessment, and to guide the team in
their interactions. Social work’s view includes an appreciation
of the socioeconomic, cultural, and spiritual dimensions of the
family’s life. As experts at helping individuals and families
maximize coping in crisis¾and
at addressing the psychosocial domains of symptoms and suffering,
as well as the experience of grief and loss¾social
workers are able to provide intensive counseling for those confronted
by life-limiting illnesses and the complex problems imposed by
illness.
Essential areas of knowledge and understanding
about palliative and end of life care include:
- The
multifaceted roles that social workers may use in palliative
and end of life care
- The
physical and psychological stages of the dying process
- The
physical and psychological manifestations of pain
- The
range of psychosocial interventions that can alleviate discomfort
- The
biopsychosocial needs of clients and their family members
- The
impact of ethnic, religious, and cultural differences on the
dying and death experience
- The
range of settings for palliative and end of life care, including
home care and hospice settings
- The
available community resources and how to gain access to them
- The
impact of financial resources on family decision-making at
the end of life
- The
development, use, support and revision of advance directives
throughout the progression of the illness
- The
accreditation and regulatory standards governing settings providing
palliative and end of life care
- The
needs faced by members of special populations and their families,
such as children; those with physical, developmental, mental,
or emotional disabilities; and those in institutionalized,
nonmedical setting
Standard 3. Assessment
Social workers shall assess clients and include
comprehensive information to develop interventions and treatment
planning.
Interpretation:
Assessment is the foundation of practice. Social
workers plan interventions with their clients based on assessments,
and must be prepared to constantly re-assess and revise treatment
plans in response to newly identified needs and altered goals
of care. Comprehensive and culturally competent social work assessment
in the content of palliative and end of life care includes considering
relevant biopsychosocial factors and the needs of the individual
client and the family (as defined by the client).
Areas for consideration in the comprehensive
assessment include:
- · Relevant
past and current health situation (including the impact of
problems such as pain, depression, anxiety, delirium, decreased
mobility)
- · Family
structure and roles
- · Patterns/style
of communication and decision making in the family
- · Stage in
the life cycle, relevant developmental issues
- · Spirituality/faith
- · Cultural
values and beliefs
- · Social
supports, including support systems, informal and formal caregivers
involved, resources available, and barriers to access
- · Past
experience with illness, disability, death, and loss
- · Coping
style, history, and crisis management skills
- · Unique
needs and issues relevant to special populations such as refugees/immigrants,
children, individuals with severe and persistent mental illness
and homeless people
- · Communicating
the client's psychosocial needs to the interdisciplinary team
Standard 4. Intervention/Treatment Planning
Social workers shall incorporate assessments
in developing and implementing intervention plans that enhance
the clients' abilities and decisions in palliative and end
of life care. Social workers shall be skilled in grief theory
and practice.
Interpretation:
Social workers in all practice areas use various
theoretical perspectives and skills in delivering interventions
and developing treatment plans.Social workers use their initial
assessments and team input in developing plans of care and offering
interventions. Social workers must be able to adapt techniques
to work effectively with individuals from different age groups,
ethnicities, cultures, religions, socioeconomic and educational
backgrounds, lifestyles, and differing states of mental health
and disability and in diverse nonmedical care settings.
Essential skills for effective palliative and
end of life care include:
- Ability
to recognize signs and symptoms of impending death and prepare
family members accordingly
- Competence
in facilitating communication among clients, family members,
and members of the care team
- Competence
in determining appropriate interventions based on the assessment
- Competence
in advocating for clients, family members, and caregivers for
needed services, including pain management
- Competence
in navigating a complex network of resources and making appropriate
linkages for clients and family members
- Competence
in supporting families, including anticipatory mourning, grief,
bereavement and follow-up services
Interventions commonly provided in palliative
and end of life care include:
- Individual
counseling and psychotherapy
- Family
counseling
- Family-team
conferencing
- Symptom
management
- Support
groups, bereavement groups
- Case
management and discharge planning
- Decision
making and the implications of various treatment alternatives
- Resource
counseling (including caregiving resources; alternate level
of care options such as long term care or hospice care; financial
and legal needs; advance directives; and permanency planning
for dependants)
- Client
advocacy/navigation of systems
Standard 5. Attitude/Self-Awareness
Social workers in palliative and end of life
care shall demonstrate an attitude of compassion and sensitivity
to clients, which respects the client's right to self-determination
and dignity. Social workers shall be aware of their own concepts
and feelings regarding palliative and end of life care and
how their personal self may influence their practice.
Interpretation:
To practice effectively,
social workers in palliative and end of life care must demonstrate
empathy and sensitivity in responding to the pain and distress
of others. Specific social work attitudes and responses that
encompass compassion and sensitivity in caring for clients shall
include, but not necessarily be limited to, the following:
- Courage
on a daily basis, to be able to confront human suffering
- Consistent
individualization of client/client system needs as the primary
care unit
- Facilitative
interactions with clients/client systems
- Ability
to communicate and work collaboratively as an interdisciplinary
team member to achieve care goals
- Willingness
to advocate for holding the focus in palliative and end of
life care on client/client system choices, preferences, values,
and
beliefs
- Awareness
of compassion fatigue and the ethical responsibility to mitigate
this condition
- Confidence
and competence to enhance professional identity and the importance
of social work roles in palliative and end of life care
Standard 6. Empowerment
and Advocacy
The social worker shall advocate for the needs,
decisions, and rights of clients in palliative and end of life
care. The social worker shall engage in social and political
action that seeks to ensure that people have equal access to
resources to meet their biopsychosocial needs in palliative
and end of life care.
Interpretation:
Social workers shall engage in social and political
action that seeks to ensure that all populations with whom they
work have equal access to the resources, services, and opportunities
they require to meet their biopsychosocial needs in palliative
and end of life care. In advocacy efforts, social work provides
unique and essential skills and perspectives such as a rich understanding
of the person-in-environment, communication skills, expertise
in group process and systems, a social justice commitment, strong
values and ethics background, and a broad psychosocial and spiritual
knowledge base. Crucial components of effective empowerment and
advocacy include identifying and defining needs from the client’s
perspective, including cultural and spiritual beliefs, and communicating
the concerns and needs of the client to decision-makers and providers
of care. Advocacy and empowerment come into practice at both
the micro and macro level.
Practice examples include linking clients with
resources, identifying and supporting family of choice, assisting
individuals and families negotiate their goals of care, navigating
through systems of care, pain and symptom management, quality-of-life
issues, team conferencing, consulting, and caregiver support.
Broader examples of advocacy include advocacy with special populations,
institutions, and communities, as well as the health care policy
arenas. It is essential to identify barriers to effective palliative
and end of life care at the macro level by addressing issues
of financial inequities, lack of culturally competent services
and other access issues, and to address those barriers so that
individuals experience the highest quality of life possible to
the end of life.
Standard 7. Documentation
Social workers shall document all practice with
clients in either the client record or in the medical chart.
These may be written or electronic records.
Interpretation:
Ongoing documentation of social work service should
reflect the assessment, issues addressed, treatment offered,
and plan of care, and must assure continuity of care between
all settings (for example, hospital to hospice).
The transfer of medical records must be conducted
in compliance with current federal and state law with an emphasis
on confidentiality/privacy of medical information. Compliance
with agency policy, particularly regarding the transfer of electronic
records, is essential.
Standard 8. Interdisciplinary Teamwork
Social workers should be part of an interdisciplinary
effort for the comprehensive delivery of palliative and end
of life services. Social workers shall strive to collaborate
with team members and advocate for clients’ needs with objectivity
and respect.
Interpretation:
Interdisciplinary teamwork is an essential component
in palliative and end of life care. Social workers are integral
team members. Social workers should advocate for the views and
needs of individuals and families in palliative and end of life
care within the team, and should encourage and assist clients
in communicating with team members. Often, clients, families,
and team members rely on the expertise of the social worker in
problem solving concerns, conflicts, and needs in palliative
and end of life care.
The team role of the social worker is to identify
resources and assist clients and families in gaining access to
these resources. The social work role calls for a collaborative
nature with an ability to empower and advocate for clients and
families when necessary. The psychosocial expertise of the social
worker affords ability to deliver support and counseling services
as part of the interdisciplinary team.
Standard 9. Cultural Competence
Social workers shall have, and shall continue
to develop, specialized knowledge and understanding about history,
traditions, values, and family systems as they relate to palliative
and end of life care within different groups. Social workers
shall be knowledgeable about and act in accordance with the NASW
Standards for Cultural Competence in Social Work Practice (NASW,
2001).
Interpretation:
Social workers use special knowledge of how individuals
and families are influenced in palliative and end of life care
by their ethnicity, culture, values, religious and health beliefs,
and economic situations. Many cultures maintain their own values
and traditions in the areas of palliative and end of life care.
Culture influences individuals' and families' experience
in palliative and end of life care. Social workers should consider
culture in practice settings involving palliative and end of
life care. Because each cultural group has its own views about
palliative and end of life practices, social workers shall understand
how these views affect individuals’ response to dying, death,
illness, loss, and pain.
Social workers who understand how culture affects
the end of life experience of an individual and family will be
able to assist clients manage the psychosocial impact of pain,
dying and death. Therefore, social workers should be familiar
with the practices and beliefs of the cultural groups with whom
they practice to deliver culturally sensitive services in palliative
and end of life care.
Standards for Professional Preparation and Development
Standard 10. Continuing Education
Social workers in palliative and end of life
care shall assume personal responsibility for their continued
professional development in accordance with the NASW Standards
for Continuing Professional Education (NASW, 2002) and
state requirements.
Interpretation:
Social workers must continue to grow in their knowledge
of theories and practices in palliative and end of life care
to effectively work with individuals and families. Palliative
and end of life care is a rapidly expanding and changing field,
which crosses all practice settings. Social workers must be clinically
competent and up-to-date with the most effective practice skills
and the broadest possible knowledge base to work with clients
at the vulnerable time at the end of life.
Numerous opportunities in professional development
are available through NASW and other professional organizations,
institutions, coalitions, and service agencies at local, state,
and national levels. Social workers should participate in and
contribute to professional conferences and training activities
on a regular and consistent basis to provide the highest possible
level of care. Social workers should also assist in identifying
palliative and end of life professional development needs by
participating in research and encouraging NASW and other organizations
and institutions to provide appropriate education for the field.
Standard 11. Supervision, Leadership, and
Training
Social workers with expertise in palliative
and end of life care should lead educational, supervisory,
administrative, and research efforts with individuals, groups,
and organizations.
Interpretation:
Social workers shall provide their expertise in
the areas of palliative and end of life care with individuals,
groups, and organizations. Social workers shall offer training
and mentoring opportunities to beginning social workers or those
transitioning into palliative and end of life care. When able,
skilled social workers shall work in conjunction with schools
of social work to enhance and encourage interest in the specialization
of palliative and end of life practice.
Social workers shall offer supervision to practicing
social workers, interns, and students to provide a guiding expertise
to clinicians in this area. Social workers who provide supervision
in the field of palliative and end of life care should have the
necessary knowledge base, experience, and competence in this
practice area.
Social workers shall contribute
to research initiatives in palliative and end of life care, not
only to demonstrate the efficacy of the social work profession
and social work interventions, but also to advance the recognition
among other professions of the essential need to address psychosocial
needs of individuals and their families in palliative and end
of life care.
References
-
- Christ, G., & Sormanti, M. (1999). Advancing social work
practice in end-of- life care. Social Work in Health Care,
30 (2), 81- 99.
-
- Csikai, E.L. & Raymer, M. (1999). The Social Work End of
Life Care Education Project: An assessment of educational needs. Insights. Retrieved October 6, 2003, from http://www.nhpco.org/files/public/InsightsIssue2_2003Social_Worker_pp8-9.pdf
-
- Field, M. J., & Behrman, R. E. (Eds.). (2002). When children
die: Improving palliative and end of life care for children and
their families. Washington, DC: National Academy of Sciences,
Institute of Medicine, Committee on Palliative and End of Life
Care for Children.
-
- Field, M. J., & Cassel, C. K. (Eds.). (1997). Approaching
death: Improving care at the end of life. Washington, DC:
National Academy of Sciences, Institute of Medicine.
-
- Kaplan, K. O. (1995). End of Life decisions. In R. L. Edwards
(Ed.-in-Chief), Encyclopedia of social work (19th ed.,
Vol. 1, pp. 856868). Washington, DC: NASW Press.
-
- National Association of Social Workers. (1999). NASW code
of ethics. Washington, DC: Author.
-
- National Association of Social Workers. (2002). NASW standards
for continuing professional education. Washington, DC: Author.
-
- National Association of Social Workers. (2001). NASW standards
for cultural competence in social work practice. Washington,
DC: Author.
-
- National Hospice and Palliative Care Organization. (2001). Competency-based
education for social workers. Arlington, VA: Author.
-
- National Hospice and Palliative Care Organization. (2003). Hospice
and palliative care. Retrieved September 3, 2003, from http://www.nhpco.org/i4a/pages/index.cfm?pageid=3281
-
- Project on Death in America. (2002). Social Work Summit on
End of Life and Palliative Care. (Press release). Retrieved
October 6, 2003, from http://www.swlda.org/Summit.htm
-
- Taylor-Brown, S., Blacker, S., Walsh-Burke, K., Altilio, T.,
& Christ, G. (2001). Care at the end of life (Best
Practice Series: Innovative Practice in Social Work). Philadelphia:
Society of Social Work Leadership in Health Care.
-
- World Health Organization. (2003). WHO definition of palliative
care. Retrieved September 23, 2003, from http://www.who.int/cancer/palliative/definition/en/
Resources
NASW has developed several policy statements, which
are published in Social Work Speaks: National Association
of Social Workers Policy Statements (2003-2006), related
to palliative and end of life care. These statements are listed
below:
- Client Self-Determination in End of Life Decisions
- Health Care
- Hospice Care
- Long-Term Care
- Managed Care
Acknowledgements
NASW would like to acknowledge the work of the
following individuals for their contributions to the "Social
Work Scope of Practice and Competencies Essential to Palliative
Care, End of Life Care and Grief Work" (as yet unpublished)
as part of the National Social Work Leadership Summit on Palliative
and End of Life Care in conjunction with the Last Acts Provider
Education Committee, the Duke Institute on Care at the End of
Life, and the Soros Foundation's Project on Death in America.
The authors are Lisa P. Gwyther, Terry Altilio, Susan Blacker,
Grace Christ, Ellen Csikai, Nancy Hooyman, Betty Kramer, Julie
M. Linton, Mary Raymer, and Judy Howe.
The work of the aforementioned authors provided
the foundation of the NASW Standards of Practice for Social
Workers in Palliative and End of Life Care.
NASW would also like to thank and acknowledge Project
on Death in America for the grant to fund the development of
practice standards for social workers in palliative and end of
life care.
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All
comments must be submitted by December 18, 2003.
Email your comments regarding this document to the following address:
spforsworkers@naswdc.org
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